I work. I don’t necessarily have a good work ethic (which I would define as requiring a healthy relationship with one’s time working and not working), but I work. When I’m depressed, I work. When I’m struggling, I work. When I’m anxious, I work. Call this all kinds of maladaptive – when I’m asked what […]
Last summer I spent 6 months in hospital. Three months in one room in one hospital, 3 months in one room in another hospital. I won’t pretend I didn’t go a bit mad during this time – clawing at the walls and wishing I could get out more than once or twice a fortnight – […]
When non-disabled people attend inaccessible events, they’re building their careers by treading on disabled people. Why does this matter?
It is a sadly common fact for disabled people (and in the context of this blog, specifically wheelchair users) to be blocked from attending events because of a lack of access, but whenever I discuss this with non-disabled people, they’re shocked that this happens at all. A lot of people fall prey to the Just […]
Wheeled I am wheeled. My weightin legs as flesh made solid ashalf dead and halfalive as weakness but I. I – my movement joy. Myleap up jagged kerbs. Myspeed. I trail people; walking –half running. Failing tocatch me. I keep going. I; after your hoursand blisters my battery runsI speed. I swerve. I keepon going. […]
A friend recently asked me how I manage to not use social media excessively and balance energy requirements to achieve things I want to. In writing up my answer, I thought it might be useful for people other than them, so it became a blog. I deal with quite significant energy limitations. While they’re better […]
Looking back: the personal and career successes of the past year.
For me, the hardest thing about living with progressive impairment rather than the static impairment I hoped I had is that shifting relationship with the ground. Just as I know what I can do, and what I can expect, this is thrown into relief by a new problem cropping up out of nowhere. I thought […]
Fi Anderson is fundraising for a wheelchair. To get one that meets her needs, she has to raise £14,125. She’s applied for countless grants, but will still need to fundraise a lot of the cost herself. If you can help by donating, please do so here: https://www.justgiving.com/crowdfunding/fisnewchair If you can’t, consider sharing this. Note: I […]
I could weep when I look at the mound of plastic I create each day, or week. The toll is ridiculous. What I have to remember is that this is what single use plastics are there for. This is because, like many other ill and disabled people, I rely on them for survival. Catheter: 7 […]